Evolution of Health Web certification, through the HONcode experience

Transcription

1 Non Governmental Organization Quality of health related information on the Web Evolution of Health Web certification, through the HONcode experience Célia Boyer Celia Boyer a, Executive Director a Health On the Net Foundation, Geneva, Switzerland

2 The Health On the Net Created in 1996, HON is a not-for profit foundation Mission: HON guides Internet users by highlighting reliable, comprehensible, relevant and trustworthy sources of online health and medical information, tackling the major obstacle of Web: the overwhelming quantity of information the uneven quality of health information available online Funded by the Geneva state, European Commission, and the French National Health Authority 2

3 Inititatives 1995 UK OMNI* 19 thèmes > 80 questions. Un répertoire de sites non audités CH HONcode 8 principes Demande de certification simple et en ligne. Gratuit évaluation manuelle et audit annuel UK Discern* 16 questions (pas audit et auto-évaluation 1997/99 F Netscoring* 49 critères, 312 points (uniquement en Français 1998/99 Es WebMedica Basé sur des codes existants (uniquement en Espagnol 2000 D MedCertain* Niveau 1 > 72 questions 2001 F Toucanomètre* Médecins webmasters francophones > 17 thèmes; 40 points 2001 US URAC 7 thèmes > 52 questions. Coût $ sites certifiés EU Guidelines* 2003 D AFGIS Code Commission Européenne 6 directives. Crée avec la participation de HON Basé sur des codes existants. Cotisation selon la taille (uniquement en Allemand *no implementation

4 Initiatives for accessing the quality of Web sites Selection or referencing (the first approach): Yahoo!, MedlinePlus (Miller et al, 2000), CISMeF (Darmoni et al, 1999) Self-regulation (the most utopian): IHC : ehealth Code of Ethics (Risk, 2000), TNO Health Trust : QMIC (Sheldon, 2002) Evaluation/certification of web pages (the most accurate): HONcode (Boyer et al., 1996), URAC (webapps.urac.org) WMA (Bosch, 2002) Popularity of web pages (the most naturally used): Google (Page et al., 1998) Collaboration of users (the most democratic): Outfoxed / Lijit, Google coop, Wikipedia Education of users for quality evaluation (the most complementary): Oxford University : DISCERN,

5 The HONcode eeurope 2002 Quality Criteria for Health related Websites

6 The HONcode Certification THE PROCESS The HONcode certification is requested by the Web publisher with a self-evaluation step The HONcode Review Committee conducts a thorough inspection and provide recommendations Transparency of the certification: excerpts of proof Deliver the HONcode seal

7 The HONcode Certification IDENTIFICATION When certified, the site displays a unique dynamic HONcode seal valid for one year

8 The HONcode Certification Duration of validity Annual systematic audit Automatic continuing monitoring Re-evaluation after a complaint submission

9 HONcode certification protocol The webmaster pledges to respect the HONcode during the time the website displays the HONcode seal. The webmaster must notify HON when the website changes significantly. The assessments are confidential, except for the information that must be published in the HONcode database on HON s website.

10 THE HONCODE DATABASE

11 The HONcode database Compliance with the HONcode principles Indexed with MeSH terms and HON labels sites in 102 countries certified sites in Europe 35 languages + 10 millions web pages certified

12 ACCESS TO THE HONCODE WEBSITES

13 Toolbar lights up if web site is certified

14 Indentification of HONcode certified sites

15

16 Centralize access to ethical information

17 Government-level collaboration The French National Health Authority (HAS chose HON for the certification of French health websites. The French bill , 13th August 2004 regarding the health insurance, mandated the HAS to define a certification procedure for health websites. Article L de la loi n n du 13 août relative à l assurance maladie : La Haute Autorité de santé est chargée d établir une procédure de certification des sites informatiques dédiés à la santé, et des logiciels d aide à la prescription médicale ayant respecté un ensemble de bonnes pratiques.«à compter du 1er janvier 2006, cette certification est mise en oeuvre et délivrée par un organisme accrédité attestant du respect des règles de bonne pratique édictées par la Haute Autorité de santé. Décret n n du 26 octobre 2004 relatif à la Haute Autorité de santé Article R La Haute Autorité de santé détermine les règles de bonne pratique devant être respectées par les sites informatiques dédiés à la santé et les logiciels d aide à la prescription médicale pour lesquels la certification mentionnée à l article L est demandée. Elle définit les modalités de cette certification.

18 An example of a certified website Orphanet : the portal for rare diseases and orphan drugs A logo linked to a dynamic, unique and dated certificate

19 Certification achieved within the collaboration with France

20 WEB EVOLUTION

21 Social Networking HONcode Authoritativeness Complementarity Privacy Attribution Justifiability Transparency Financial disclosure Sponsorship Indicate the qualifications of the moderators Indicate if the platform is moderated or not Respect and Honesty Information should support, not replace, doctorpatient relationship; Audience. Age limitation Disclose that posted message are visible for all Disclose if posts can be modified, or deleted The platform rules must be easily accessible from the platform s homepage. Disclose conflict of interests Disclose address for web 2.0 platform members in order to contact the moderators of the forum. Identify funding sources and if moderators are volunteers or not Clearly distinguish advertising from editorial content Engage sites to disclose rules managing the collaborative platform Rules for collaborative platforms useful for 91% of the social networks

22 SEARCH ENGINE TECHNOLOGIES OF HON

23 HONcode search engine Foundation Health On the Net

24 Automatic detection of HONcode principles of health web pages Identified automatically the HONcode principles within a site Search engine with filtering options: HONcode principles, readability levels

25 CONCLUSION

26 International recognition In 2002, HON Foundation was recognized as a non-governmental organization and granted special consultative status with the United Nations Economic and Social Council In May 2004, HON won the «eeurope Award for ehealth» Since 2007, in France, HON is the official certifying organisation for French health websites

27 Conclusion Active for over 15 years Educate citizens to efficiently use the medical information Automatic tools developed in order to support human expertise and tackle the large number of existing Web pages HON implement the 2001 eeurope Quality Criteria for Health Web sites, based on the HONcode principles Collaboration with the French Health Authority for the certification of health Web sites in France Adherence to the HONcode enhances a website s overall quality

28 Medical information analysis and retrieval European project: FP